18th Oct 2010 - 27th wk scan (LHR and Liver position)

Scan shows: CDH left sided. Shows further herniation of abdominal contents up into the left side of the chest with significant are of liver measuring 30x27 mm seen behind the stomach and bowel. The heart remains deviated to the right side but normal anatomy and great artery connections. The basic 2 perpendicular measurement LHR is 1.3 today indicating poorer prognosis at present.

So, that explains it all. This time, I took things easily. I felt so weird maybe because, I was more prepared this time. Scan is not even getting any better…it’s probably getting worst. But I still would like to know my options. After the detailed explanation from Foetal medicine specialist midwife, I was given a clearer picture that I will have a planned deliver thru C-section so the team will be present on time of delivery. The baby’s condition is unpredictable until the time of birth and nobody can tell what is going to happen. After quietly listening to her and Mr. Shah, I have told her that “I can see all the possibilities that may arise after delivery, I am even expecting the worst scenario…but as a parent, in the back of my mind, I am still expecting the impossible and miracles to happen. And I would like to try every possible option available”. I mentioned about the possibilities of FETO (Fetoscopic tracheal occlusion) surgery. I asked if this will be another option for me to consider. Will it do me and my baby any benefit while he's in my womb or even right after birth?. I’d like to weigh the risks involved if I undergo the procedure against baby’s very poor condition after birth. I am glad they got my point. Ms. Amanda is very comforting telling me that she understood what I’m trying to say. I am sure she is a mother herself who can feel the heart of a mom to protect her helpless child. She assured me that she will book me an appointment with a specialist in London where we can inquire about the possibilities of the FETO surgery and maybe, a second opinion on the management of treatment.

After a day, I was booked to see Prof. Nicolaides in King’s College Hospital in London on the 21^st of October. It was a mixed emotion but I have to plan everything from our travelling, Lianne’s school arrangements and everything.